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Links Condition InformationOur son has complex additional support needs as a result of a brain injury called PVL or to give it it's full title Periventricular Leucomalacia. As a result of PVL he now has a collection of labels which may seem a little daunting. Please use the following links to learn more about these labels. PVL -
Periventricular Leucomalacia * CP - Cerebral Palsy My husband is retinoblastoma survivor and our children have unfortunately inherited the gene which causes this condition. You can learn more about retinoblastoma here *.
*redirects you to a downloadable document from VIScotland.
OrganisationsRNIB - Without RNIB Scotland's Education and Families Manager we wouldn't have survived our battles with the Education Department. Thanks Mary! VIScotland - Superb site, brilliant organisation. CHECT - fighting retinoblastoma. APDUK - Auditory Processing Disorder in the UK.
EducationStatutory Guidance
relating to the Education (Additional Support for Learning)
(Scotland) Act 2004 -
here Govan Law Centre (Education Law Unit) - We really like them! Our other source of sanity through the battles with our Education Department. Their guide to the Additional Support Needs Legislation is a good place to start. SupportYahoo groups are a great way to "meet" other parent's dealing with similar issues, especially if these are relatively rare. Yahoo Groups Home Page. I Co-moderate the Yahoo PVL Group and also a CVI Group. If you would be interested in joining a Scottish PVL/ CVI Support Group then please email me your details. Other Sites of Interest
Starcast Photography -
Home of Stewart the friendly giant who happens to be a great
photographer.
Ablaze of Glory -
Display quality Fireworks available to the public (restrictions
apply).
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